Mother tells of heartbreak after adorable baby son died at two months of rare genetic condition that caused his skin to slide off his tiny body
Mother tells of heartbreak after adorable baby son died at two months of rare genetic condition that caused his skin to slide off his tiny body
A Boston mom has shared her heartbreak after losing her two-month-old son to a rare genetic condition which caused his skin to slide off his body. Felix Jean died in March 2022 from complications associated with epidermolysis bullosa (EB), a condition which causes painful skin blisters and peeling. His devastated parents Erin and Travis Jean made the heart wrenching decision to put him on palliative care shortly after he was born, after finding out his agonizing condition was only likely to worsen with age.
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